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  • Writer's pictureMike Wilson

We've noticed that since James has left the hospital as an inpatient and has begun his 3 week outpatient therapy sessions he has shown a higher degree of motivation. Settling back into the rhythms of the home such as: sitting up in his own chair to eat (instead of in a hospital bed), moving on his own to reach his toys (instead of having them brought to him), interacting with Shae and getting outside for walks, have all required more out of James and we have watched him recover faster since being in our hotel. He has already started to pull his knees in and push his hands up into a four point position. Not bad at all since having spinal surgery a week ago! He's quickly become more like himself.



We said our goodbyes to Heather Ann and James who came to help us for the first week with Shae. It was wonderful to have them visit us each day during our stay at the hospital and to know that Shae was cared for. We visited the Gateway Arch downtown before they left for the long drive north.




Here is a glimpse into what the Outpatient Therapy Services looks like at St. Louis Children's Hospital. They have an incredible facility and a wonderful team.




Therapy with Addy

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  • Alison Wilson

We got discharged from the hospital today! We had a PT session this morning and went over discharge details with both the physio and nurse and then we got to go home - well home for the next 3 weeks anyway (a hotel called the Chase - just a 10 minute walk away from the hospital). It’s so nice to be in our own space again! Outpatient therapy starts tomorrow and will continue Monday-Friday for 3 weeks. Phase 2 begins!

We had a celebratory roast beef dinner tonight made by my mum. It’s been so nice to have my parents here.


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  • Alison Wilson

Just like day 3, day 4 involves 2 sessions of physiotherapy - one session in the morning and the second in the afternoon. Some children may require the parent to be close by to encourage and give comfort when necessary. We've discovered early on with James that he does much better when we're out of sight. We tried to back away during the morning session but still in eye sight and although he wasn't as upset as yesterday, it still wasn't great. This afternoon however we stayed out of sight in a small room in the gym and it worked much better! As parents we're frequently balancing the push and pull of James' emotional wellbeing as well as pushing him towards his mobility goals. We try to carefully read James' cry - is it frustration, discomfort, pain, anxiety? It's quite difficult with limited verbal skills. It was reinforced today that James does much better when we're out of sight and that was satisfying to see him succeed and closer to his pre-SDR temperament.


We enjoyed the gardens again today, this time with James.



Hospital life hasn't been all bad! Look at that relaxed pose (and the spread of food!) It's been amazing to see how loose and relaxed James' legs feel after SDR.

Tomorrow is discharge day!



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2018 Posts

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